The National Health Service Commissioning Board and Clinical Commissioning Groups (Responsibilities and Standing Rules) Regulations 2012

Regulations 7, 10 and 11

SCHEDULE 4 E+W Services for rare and very rare conditions

Interpretation E+W

1.  For the purposes of this Schedule—

(a) an individual is a child if they have not yet attained the age of 18 years old;

(b) an individual is a young person if they are aged 13 years old or over but have not yet attained the age of 21 years old; and

(c) an individual is an adult if they are aged 18 years old or over,

unless, for the purposes of a service specified in this Schedule, the Board, or the person providing such a service pursuant to a commissioning contract with the Board, considers on clinical grounds that an individual should otherwise be treated as a child, a young person or an adult.

The services E+W

2.  Adult ataxia telangiectasia services.

3.  Adult congenital heart disease services. E+W

4.  Adult highly specialist pain management services. E+W

5.  Adult highly specialist respiratory services. E+W

6.  Adult highly specialist rheumatology services. E+W

7.  Adult secure mental health services. E+W

8.  Adult specialist cardiac services. E+W

9.  Adult specialist eating disorder services. E+W

10.  Adult specialist endocrinology services. E+W

11.  Adult specialist intestinal failure services. E+W

12.  Adult specialist neurosciences services. E+W

13.  Adult specialist ophthalmology services. E+W

14.  Adult specialist orthopaedic services. E+W

15.  Adult specialist pulmonary hypertension services. E+W

16.  Adult specialist renal services. E+W

17.  Adult specialist services for patients infected with HIV. E+W

18.  Adult specialist vascular services. E+W

19.  Adult thoracic surgery services. E+W

20.  Alkaptonuria service. E+W

21.  Alström syndrome service. E+W

22.  Ataxia telangiectasia service for children. E+W

23.  Autoimmune paediatric gut syndromes service. E+W

24.  Autologous intestinal reconstruction service for adults. E+W

25.  Bardet-Biedl syndrome service. E+W

26.  Barth syndrome service. E+W

27.  Beckwith-Wiedemann syndrome with macroglossia service. E+W

28.  Behcet's syndrome service. E+W

29.  Bladder exstrophy service. E+W

30.  Blood and marrow transplantation services. E+W

31.  Bone anchored hearing aid services. E+W

32.  Breast radiotherapy injury rehabilitation service. E+W

33.  Child and adolescent mental health services – Tier 4. E+W

34.  Choriocarcinoma service. E+W

35.  Chronic pulmonary aspergillosis service. E+W

36.  Cleft lip and palate services. E+W

37.  Cochlear implantation services. E+W

38.  Complex childhood osteogenesis imperfecta service. E+W

39.  Complex Ehlers Danlos syndrome service. E+W

40.  Complex neurofibromatosis type 1 service. E+W

41.  Complex spinal surgery services. E+W

42.  Complex tracheal disease service. E+W

43.  Congenital hyperinsulinism service. E+W

44.  Craniofacial service. E+W

45.  Cryopyrin associated periodic syndrome service. E+W

46.  Cystic fibrosis services. E+W

47.  Diagnostic service for amyloidosis. E+W

48.  Diagnostic service for primary ciliary dyskinesia. E+W

49.  Diagnostic service for rare neuromuscular disorders. E+W

50.  Encapsulating peritoneal sclerosis treatment service. E+W

51.  Epidermolysis bullosa service. E+W

52.  Extra corporeal membrane oxygenation service for adults. E+W

53.  Extra corporeal membrane oxygenation service for neonates, infants and children with respiratory failure. E+W

54.  Ex-vivo partial nephrectomy service. E+W

55.  Fetal medicine services. E+W

56.  Gender identity development service for children and adolescents. E+W

57.  Gender identity disorder services. E+W

58.  Heart and lung transplantation service (including bridge to transplant using mechanical circulatory support). E+W

59.  Highly specialist adult urinary and gynaecological surgery services. E+W

60.  Highly specialist allergy services. E+W

61.  Highly specialist colorectal surgery services. E+W

62.  Highly specialist dermatology services. E+W

63.  Highly specialist metabolic disorder services. E+W

64.  Highly specialist pain management services for children and young people. E+W

65.  Highly specialist palliative care services for children and young people. E+W

66.  Highly specialist services for adults with infectious diseases. E+W

67.  Hyperbaric oxygen treatment services. E+W

68.  Insulin-resistant diabetes service. E+W

69.  Islet transplantation service. E+W

70.  Liver transplantation service. E+W

71.  Lymphangioleiomyomatosis service. E+W

72.  Lysosomal storage disorder service. E+W

73.  Major trauma services. E+W

74.  McArdle's disease service. E+W

75.  Mental health service for deaf children and adolescents. E+W

76.  Middle ear implantable hearing aid services. E+W

77.  Neurofibromatosis type 2 service. E+W

78.  Neuromyelitis optica service. E+W

79.  Neuropsychiatry services. E+W

80.  Ocular oncology service. E+W

81.  Ophthalmic pathology service. E+W

82.  Osteo-odonto-keratoprosthesis service for corneal blindness. E+W

83.  Paediatric and perinatal post mortem services. E+W

84.  Paediatric cardiac services. E+W

85.  Paediatric intestinal pseudo-obstructive disorders service. E+W

86.  Pancreas transplantation service. E+W

87.  Paroxysmal nocturnal haemoglobinuria service. E+W

88.  Positron Emission Tomography – Computed Tomography services. E+W

89.  Primary ciliary dyskinesia management service. E+W

90.  Primary malignant bone tumours service. E+W

91.  Proton beam therapy service. E+W

92.  Pseudomyxoma peritonei service. E+W

93.  Pulmonary hypertension service for children. E+W

94.  Pulmonary thromboendarterectomy service. E+W

95.  Radiotherapy services. E+W

96.  Rare mitochondrial disorders service. E+W

97.  Reconstructive surgery service for adolescents with congenital malformation of the female genital tract. E+W

98.  Retinoblastoma service. E+W

99.  Secure forensic mental health service for young people. E+W

100.  Severe acute porphyria service. E+W

101.  Severe combined immunodeficiency and related disorders service. E+W

102.  Severe intestinal failure service. E+W

103.  Severe obsessive compulsive disorder and body dysmorphic disorder service. E+W

104.  Small bowel transplantation service. E+W

105.  Specialist burn care services. E+W

106.  Specialist cancer services. E+W

107.  Specialist cancer services for children and young people. E+W

108.  Specialist dentistry services for children and young people. E+W

109.  Specialist ear, nose and throat services for children and young people. E+W

110.  Specialist endocrinology and diabetes services for children and young people. E+W

111.  Specialist gastroenterology, hepatology and nutritional support services for children and young people. E+W

112.  Specialist genetic services. E+W

113.  Specialist gynaecology services for children and young people. E+W

114.  Specialist haematology services for children and young people. E+W

115.  Specialist haemoglobinopathy services. E+W

116.  Specialist immunology services for patients with deficient immune systems. E+W

117.  Specialist mental health services for deaf adults. E+W

118.  Specialist morbid obesity services. E+W

119.  Specialist neonatal care services. E+W

120.  Specialist neuroscience services for children and young people. E+W

121.  Specialist ophthalmology services for children and young people. E+W

122.  Specialist orthopaedic surgery services for children and young people. E+W

123.  Specialist paediatric intensive care services. E+W

124.  Specialist paediatric liver disease service. E+W

125.  Specialist perinatal mental health services. E+W

126.  Specialist plastic surgery services for children and young people. E+W

127.  Specialist rehabilitation services for patients with highly complex needs. E+W

128.  Specialist renal services for children and young people. E+W

129.  Specialist respiratory services for children and young people. E+W

130.  Specialist rheumatology services for children and young people. E+W

131.  Specialist services for children and young people with infectious diseases. E+W

132.  Specialist services for complex liver, biliary and pancreatic diseases in adults. E+W

133.  Specialist services for haemophilia and other related bleeding disorders. E+W

134.  Specialist services for severe personality disorder in adults. E+W

135.  Specialist services to support patients with complex physical disabilities. E+W

136.  Specialist surgery for children and young people. E+W

137.  Specialist urology services for children and young people. E+W

138.  Spinal cord injury services. E+W

139.  Stem cell transplantation service for juvenile idiopathic arthritis and related connective tissue disorders. E+W

140.  Stickler syndrome diagnostic service. E+W

141.  Vein of Galen malformation service. E+W

142.  Veterans' post traumatic stress disorder programme. E+W

143.  Wolfram syndrome service. E+W

144.  Xeroderma pigmentosum service. E+W